On the AutismHWY there are always road signs even if you are missing them at first. There are rights of ways…and many wrong way: do not enter signs. They are something that must be considered, understood and supported respectfully before safe travels for Autistic people can really occur. You would never just hop in and start driving a car when you don’t know how to operate the vehicle or the HWY, would you? We know this preeminently here on the “Autism Highway.” Rules of the road keep us safe, sound and alive. If you don’t know and/or go against these ‘rules of the road’ things can go horribly wrong, and do! This is a perfect example of how “right and wrong” not only matter but, are a matter of life and death!
Understanding Autism from the inside out, is not widely considered gold standard… when many thinking people know that it actually could, should and will be. Too far ahead of the Autism learning curve is a hard place to be for those of us holding these pragmatic ideals. We believe that accepting the knowledge Autistic people have concerning the internal mechanisms they experience, IS THE NEW gold standard for Autism. Sadly, we live in a time where the majority of injustice revolves around people that cannot admit that they do indeed have things wrong.
Old systems that are not working, do die hard. Systems that were initialized before we had the wisdom of the Autistic experience to draw from, strive to maintain their old dominant message control. People that have built their frameworks for Autism supports from a body of knowledge that is in fact flawed are now extremely confused about their foundation and it’s direction moving forward. As we quickly approach 2017 shouldn’t we be busy utilizing the many words of wisdom from Autistic people? Shouldn’t we all be excitedly updating our data and creating new programs that lead to many NEW OPPORTUNITIES by co creating…
The community needs a complete overhaul OR maybe ten million urgent updates reminding us we have to progress to Autism 10 ?!
The division in the Autism community as we see it is about respect. It’s not a fight over who is right and who is wrong. It’s about respect for the Autistic person and their unique systems, voices and needs. The differentials between Autistics is as vast as anything else in life. Finding the comfortable approaches that work best for each person must be deciphered and accommodated in times of growth and regression throughout a lifetime. In the past society has relied on assumptions and the Neurotypical assessments of what “is presumed best” for Autistic people. That model has caused much damage and continued bewilderment. It’s time for a completely fresh approach. An Autistic one.
When we came on line in 2010 we did not seek to “talk over” or for Autistic people. We were looking for amazing opportunities to merge with Autistic people. We were seeking opportunities to learn from their astounding life perspectives and to partner with them as we speak truths on a global platform. Thankfully, we indeed have, to our great benefit and JOY.
That is why it is so hard to see people like Bob and the late Suzanne “Wright” co-founders of Autism Speaks using their power and celebrity influence to inform the world on the AutismHWY protocol without ever knowing the rules of the road or anything about the HWY’s drivers aside from their own young grandson. Organizations that demand they are doing the “right thing” before they even have a clue what that right thing is or even can be, do a huge disservice. Like the multitudes of Mommy and Daddy bloggers who’s child was diagnosed yesterday and have now written guides for others from no knowledge whatsoever…?? People really need to research, relax and understand Autism before they tell others what to understand. It’s just that simple. The vast majority of Autistic people have been dismissed and ignored for decades…while others non Autistic people wildly narrate their lives incorrectly. There is so much wrong in that big picture!
If organizations, “experts” and others seek to truly empower Autistic people through respectful supports then they must take real steps to make that happen. Working with Autistic adults to create understandings about best practice for Autistic children, by no longer talking over Autistic people as Autism authority. By planning conferences that FEATURE and COMPENSATE Autistic advice as gold standard and not as last minute add-ons or exploited infantilized tokens. Autistic people should be the centerpiece of the actual EVENT and respected as the vital citizens they are. Their knowledge can be used to transform the lives of everyone… once everyone is actively listening!!
Now that mainstream can gain inside knowledge from many Autistic minds we can build respectful supports that will work within the Autistic grid and mindset. Things will become easier for everyone when the ideals and linguistics of Autistic people are recognized and processed correctly by NON Autistic people! Forcing Autistic people to communicate and work in ways that are not in harmony with their internal mechanisms must stop. We can respect our differing ways of communicating and other sensitivity differences by working to build these innerstandings respectfully. We believe wholeheartedly in this better way to merge neurotypical and atypical society with the Autistic way. Egos aside. If you are on the right side of respect…you can’t go wrong!