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Posts Tagged ‘self injurous behaviors’

Am I Amusing Myself with Awareness?

Another great day at San Fransisco’s Amusement park. Our third year attending  California’s, Great America Disability Awareness Day and I am asking myself the titled question.  Is anybody really listening? Many people campaign to sign you up and sell you services at these events that are dubbed Awareness Days. “Resource Fairs”…are resource fairs. On “Awareness days” I would love to see these resource companies providing some useable awareness. Set up for a day of info and experiential teaching. Real awareness should be free and easy to obtain for all people. You need not sign-up for a fee or join a program to get some later if you’re lucky. Yes, we all need to pay our bills by selling our books and our services/programs to keep afloat. However, I see more organizations selling than teaching at these events. Sell your programs at the “Resource Fairs” and teach the public on “Awareness Days.”

So, after attending another wonderful event at a mainstream BIG Amusement Park…I have to furthur question, is anyone truly becoming more aware? Sure Autism is more of a hot topic today. Mainly because the numbers of diagnosis have risen dramatically in the last 10 yrs. Everyone has now heard of ‘it.’ What they think they know about ‘it’…is a whole other story! Professionals included.

Teaching people about Autistic people is what constitutes Awareness in my mind. How do Autistic people experience our world? What brings them comfort? How are they processing information? What brings them success and happiness? How can we best facilitate that? The lists of questions and things to be explained about people on the spectrum is endless. To infinity and beyond. Give me an inch and I will go a mile. Trying to teach you something about AUTISM you can take to the streets. Road rules to understand those of us living on the AutismHWY! Not just attending to provide you with a brochure of my services or a pencil with my company info printed on it. I talk the talk for Awareness because, REAL Awareness is the first step. If we don’t get people educated in a more functional manner the acceptance and comfort we crave will simply never follow. 

 Each year we have had a unique Awareness experience with teaching opportunities arising organically!

This year was particularly intense.Living up to our 2012 coloring book: “Why does Wyatt do that?” There are always many reasons and ever changing areas of concern in regards to our ‘famous title’ question! Today my 13 1/2 yr. old needed some very deep pressure, deep meridian tapping along the sides of his skull. Most folks would not understand that so…I only showed my hand slightly. (Moving to a more private location for the intenser moments) When I say meridian tapping , most would probably say head-banging. Wyatt feels pressure from the input he is experiencing (environnmental or physiological) and will not feel calm until it is literally banged out of him, up and down the sides of his head in repetition. One hour or so before the end of the event this occured. Wyatt became stressed, began whooping then screaming and was in intense pain. This momentary intense pressure builds up outwardly through a series of self injurious behaviorial pinchings of his arms head and chest ( &*importantly anyone who may try to stop him.) He grabs my wrists and then directs my hands to clap his ears and head. Up and down with gradating intensity. The finger pressing claps (kinda like the way I used to flip my killer softball pitch) gradually become karate chops  (as directed) and seem to re-boot his being. Hitting, tapping and finger-rolling massaging these pressure points has become a sometime daily occurance over the last year. It can happen in any time of day in any condition and can last 20 minutes or longer. Are people ready for this? Most likely not…especially when he is in that intense zone but, when you know what your child needs you must ‘go there.’ I am coming-out proudly as a full fledged head-wrapping, meridian tapping mama unconcerned what anyone may think of it. However, quite willing to rap about it so you and many others can begin to wrap their heads around it!


This particular Awareness is not amusing and somehow I just love the irony of explaining something so serious at an Amusement Park! Guess, I just answered my original question!



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LOOKING OUR WAY~ Each and every single day! As Wyatt and I travel our daily HIGHWAYS & BYWAYS ~ It is VERY Interesting watching these curious youngsters. I study them…study him. You can actually see the wheels spinning, SERIOUSLY! Think …Indy 500. They wonder? About Wyatt~ his actions, his autism …its an issue that has NOT really BEEN broached. Why is that…I wonder? THEY Wonder, I Wonder…WE ALL WONDER!??

Does it have anything to do with that HOT POTATO “Theory”I mention in the blog titled… “Why DOES Wyatt DO that?” PASS that PUPPY off! …” We just don’t have time right now”…”It’s too complicated…we’ll never be able to understand that”…”Oh yeah, and did I mention we were busy.” We know life is crazy, busy at times but, this REALLY IS important. The COMMON UNDERSTANDING is the first step we need to take. If the adults are TOO BUSY

No problem, I’ll skip right to a much MORE RECEPTIVE audience ANYWAY!! Why is it that CHILDREN are always much more open and able to recieve NEW IDEAS? Plus they are not running around trying to get a paycheck and a million other things done everyday. THAT HELPS lol! They definitely have the time to learn. So I will just see what I can do about that! The 3 stories I have written are WYATT INSPIRED...So you know they are SWEET !

I cannot WAIT…until everyone can see them!! We have been working closely on all the concepts and we are getting close to production for BOOK #1 “WHY does Wyatt DO THAT ?” ‘making friends with autism’ !! Working with…my illustrator, RACHEL WALKER is incredible! Not only does she have MAD SKILLS...she is just such a positive and naturally inspiring person! You will be AMAZED at the range of her TALENTS when you visit her website HERE>

When we started the project Rachel had very minimal knowledge concerning AUTISM. She has not only understood my vision…She has taken it upon herself to learn as much as she can about the SPECTRUM! I will take a little credit on that front. Being exposed to the books explained some concepts to her & wet her appetite on others… I am hoping that this is the case with everyone that reads it! When the PARENT, TEACHER or CARE-GIVER read the book to their “charges” ~THEY WILL LEARN as well!!

Just a few cute discussions about SELF-STIMULATION…SENSORY ISSUES and SELF INJUROUS BEHAVIORS. 3 OF the ” BIGGIES“…I thought, a very good start! These things seemed SOoo MYSTERIOUS to me at one point in time! NO LONGER! I am over “IT” as they say! I no longer allow AUTISM to BULLY me …I have gotten aquainted with this PUNK! I’ve said it before ~HE was nothing I asked for…but, I accept that He is here.We will continue to expose his SECRETS & Our lives will be HAPPY, FUN and SUCCESSFULREGARDLESS !!

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