Here on the AutismHWY we often times find ourselves in the Autism fast-lane. Researching and focusing on the information that Autistic people shareabout Autismhas placed us there. Understanding how Autism operates in an individual’s human system is how we feel safe driving in that “fast lane.” How we want all others to feel. It is how we cope pragmaticly and how we move forward in a world long confused by how to respectfully communicate with every type of diversity. Autistic people are here to guide other Autistic people and the larger world…
On this day, January 20th, 2017 as a new President is sworn into these United States of America we are willing to make a very bold and provocative prediction. Even as the Daily Beast reports that the White House website made disheartening civil-rights deletionstoday. AutismHWY.com still knowingly believes that President Donald J. Trump will indeed be “trumped” with Autism information provided by Autistic people. During his administration he will find that he needs to interface with #actuallyAutisticpeople to fully face the diversity picture. It will be a momentous thing… in a brand new word, it will be UGE. The private citizen Donald J. Trump had been commenting on the vaccine controversy for years and has in fact sounded very much like an Autism stakeholder. During the Presidential debates he referred to Autism as an epidemic (seen here.) Words and beliefs he certainly shares or shared with his friend Bob Wright the Co-Founder of Autism Speaks the Autism organization furiously boycotted byAutistic people. Misinformed core beliefs about Autism and it’s history fueled by the lack of experiential knowledge of, or friendships with Autistic people are frankly extremely dangerous. Autistic people will fight for their civil rights and voices to be heard. Be ready President Trump.
We respectfully ask for any future misguided comments regarding Autism to cease Mr. President as you now are indeed an Autism stakeholder as the leader of a nation founded on free thought. Do not over think things for Autistic people because they are right here watching what you do and say about them. Please do not create any commissions touching on Autism with out the Autistic community. Seek out their counsel on their issues. Their points of view will change the world in ways we ALL desperately need.
We respectfully ask that you not gather Autism information from skeptics and critics and instead go straight to the source. Autistic people and those that respect Autism understand just how dangerous linking vaccines to Autism is. It is in reality a life or death matter on a plethora of levels. Horrific levels of bigotry, violence, abuse and harm caused to Autistic people sometimes due to anti-vax Autism rhetoric. Not to mention the public health crisis the world could experience from exposure to disease through ignorance powered by hatred and fear of Autism and vaccines. Those mainstreamed negative belief systems surrounding the “supposed causation” of a naturally occuring Autism population will shape some very scary and life threatening policies. Policy that will further entrench us in yet more of the same Autism ignorance, hatred and stigma we’ve experienced for decades. We will no longer continue to tolerate society’s propensity to avoid science and factual information by replacing it with the myths of pop culture.
Today’s inaugural address was said to be for the “ignored and forgotten people that will be ignored no longer.” Mr. President, Autistic people will not continue to be ignored and denied their natural human existence. They will not sit back and accept the world to misrepresent them and the supports they need to live a happy and healthy Autistic life. Autistic people will be and should be the voices crucially included to set precedents by helping us shape respectful communication and research towards best Autism practice for our nation and the WORLD!
We agree the time for empty talk is over! You spoke those very words today…
RESIST FAKE AUTISM NEWS…Mr. President and THINK FAST…Because Autistic people ARE!!
AutismHWY is blessed to know so many amazing Autistic activists and advocates. This has been THE biggest and best result of our 5 year history. Our GIFT. Thank you to the Autistic community and it’s amazing emerging culture!!
When our HWY first merged on to the internet… we did not know WHAT to expect. So many things being said about Autism. From every direction, from too many angles. It was an Autism informational ‘freeway congestion’ of overload. What do you listen to? Who do you listen to? What weight do you assign to those words you are rationally hearing? Much like the moment of diagnosis. Filtering through what seems to apply to you and your loved ones and what simply does not. It is not a simple task and in fact a very fluid one. Remember to always be flexible and fluid in this ongoing informational filtering process.
The voices in Autism come from many places. Too many places. Many of these places with fiscal motives behind them. Voices filled with pain, pride and ego. Voices filled with humanity. This is where we took our major right turn…
At AutismHWY we turned to the voice of Autistic people. The voice of the people that understand the mechanics of the Autism engine. The specialists! If your child is a Mercedes…well then you know the mechanic he or she may need for fine tuning. This IS the AutismHWY after all folks. The insights and hidden Autistic information that cannot be gleaned from “professionals” OR “parent-bloggers” comes from one place and one place only.
The decades long movement of Autistic people uniting has grown rapidly in 2015. Major collaborations amongst them like the Boycotting of Autism Speaks and the forming of Autonomous Press seek to spread their truths on an ever widening scale. Signal boostings of their information by allies will continue to grow. Their story being centrally cited in the award winning N.Y. Times bestselling book NeuroTribes by the wonderful and well regarded journalist Steve Silberman has increased visibility. Some cages have definitely been rattled. Shaken up to the point of Autism Speaks finally placing two Autistic adults as seated board members after 10 yrs. in existence without them. Let’s hope these seats are equally functional and not just pretty place-cards on the Autism Speaks table.
The future of Autistic people lies in the hands of Autistic people. The AutismHWY dictates it.
The traffic has been too congested with the previously written road rules. Non Autistic road rules that don’t apply to the Autistic engines they seek to mainstream. We need Autistic guidelines to merge with professionals and parents. These highly specialized people deserve the expert mechanics that will get us all back on the HWY together peacefully. Autistic people and parents of Autistic people must start merging together on 2 lane HWYs….1 way HWYs are no longer working. Together we can change the future for Autistic people their parents and the professional community that supports us all.
This is the GIFT we desire for ALL of our FUTURES!
Living in a constantly upgrading world, all families want to feel they are “covered.” Having all of our bases covered is what we are taught to do, on and off the fields of our lives. Covered by insurances, covered by the governments of our nations, the states and communities we live in, by the health and educational systems and hopefully by our families and friends. Our safety has become synonymous with being ”covered.” The healthcare system revolves around “covering us.” Police officers and soldiers ‘cover’ each other in the most dangerous situations. We have all hopefully had people help us cover a tab, or two! Artists cover other Artist’s work, books are designed to be judged by their covers as we adamantly deny doing that! An entire industry of politicians, celebrities and organizations seek media coverage for prosperity and power. So, with everyone seeking coverage and everyone else seeking to cover us, how can we trust all of this rampant coverage? What is good coverage and what is BAD COVERAGE?
In 2005 AUTISM SPEAKS decided on the latter. Bad coverage. Sure, in their minds they were doing something noble by covering people they saw as needing coverage. Yet, did they look beyond their new sliver of Autism IQ, their erroneous belief system formulated by parents and grandparents with no innerstandings of Autism? No. Did they consider the existing population of Autistic adults living and raising their own Autistic children in the world? No. Did they mindfully consider what kind of coverage should be given to Autistic people and their families for health and well being? No. They focused on the family members of Autistics that misunderstand and often despise Autism, choosing to live in varied states of confusion, pain and distress. Autism Speaks chose to listen to people that prefer their loved one be as un-Autistic as possible. They did not consider AUTISM as a natural human condition or the people understanding, accepting and thriving on this incredible spectrum. They immediately disassociated themselves from Autistic people by demonizing Autism as an enemy to be crusaded against. They campaigned AGAINST AUTISTIC PEOPLE in endless media blizzards. If people were not “Aware” of Autism, they now became aware that it was all “wrong” according to the Wright’s. Autism Speaks claimed to speak for a population of people they had never met. Let alone, understood, respected and engaged with. How arrogant of them to decide that Autism needs to be “Spoken for” and ”Crusaded against.”
A 10 yr. media campaign exploiting the difficulties Autistic people and their families endure when not in alignment with Autism is NOT awareness or respectful, loving ‘coverage’. It’s HATE and fear mongering. It’s misinformation spun negatively to the population, used to gain footholds and dollars. It’s using misinformation and power to decide what coverage others need and will get. I saw many people unhappy when the U.S. government was deciding how citizens would be covered through the new health-care/insurance system, this is no different! Allowing 41 states to COVER outdated harmful methods of ABA therapy is frightening to many Autistic people. Reforming insurance coverage for Autistic children without the wisdom of Autistic elders is negligent at best. Why would a company “speaking for” a population crying out for inclusion, willfully exclude them? Since we receive no answers we must assume it’s the same reason they crusade against Autism. Misunderstanding and- HATE.
This is why there is a movement boycottingAutism Speaks.
HATE and misunderstanding is what Autistic people and their allies “Crusade against.” We crusade against a company and it’s supporters unwilling to update their idea of COVERAGE. Unwilling to learn from the scores of Autistic voices speaking out loudly with amazing insights for us ALL. Unwilling to acknowledge that AUTISM is a life-long condition we must embrace, respect and innerstand. We crusade against non-Autistic voices that COVER Autistic voices. We ask that professionals work with Autistic adults not against them by covering us with (what we now know) are harmful therapies. Therapies created by non-Autistic people with compliance and indiscrimination from non-Autistic peers as primary goals. Therapies that have hurt an entire generation of Autistic people. Time to re-examine the coverage Autistic people can use, not what non-Autistic people think they need. Time to re-examine the therapies given to Autistic people without their advice. Time to stop deciding it is okay to speak for people that are already speaking. It is time to listen to the voice of our Autistic elders in every instance, to enhance the futures of our Autistic generations to come.
People Magazine it would have been nice if you had uncovered the truth about heroes among us in 2015.
Hear the truth that the Wright’s have been doing Autism wrong for 10 yrs. and counting…
Autism $peaks turned 10 years old this year. In 2005 when Bob and Suzanne Wright started their Autism conglomerate my son was 6 yrs. old with a two year old diagnosis of …very Autistic. It didn’t jolt me or upset me in the ways I had imagined as a young girl growing up daydreaming of children and all of the “what ifs” surrounding the miracle of childbirth. It seemed to upset the people I told about it much more. (?)
At that time it hadn’t occurred to me why. I did not have a computer and was completely unaware of what has come to be known as the on-line ”Autism Community.” I remember that I did start hearing disturbing radio spots by A$. T.V. and billboards. All messaging to me that I should be afraid…very afraid. People that know me are aware that I do not scare easily. I really wasn’t getting the big Autism picture but, I knew this new company saying horrible things about Autism held nothing valid for my son and myself. Fear tactics are a turn-off to me. I was already attached to my son and he to me. He had not disappeared, he was not gone and he was certainly no burden. I was raised by people that believed in the POWER of positivity! Especially my Dad. I really wish he was here to advise me on this absurd situation that Autism Speaks has placed on the people traveling the AutismHWY.
I remember upon finding out Wyatt was Autistic people would slump their shoulders and say, “Oh, I am so sorry”…and then proceed to tell me that I should go to the “Autism Walk.” As if it was the Disneyland for people like my child. I did what all people would do upon hearing that and looked into “the Autism walk” whatever the heck that was.
I remember thinking why would we want to walk with Autism Speaks? People on the radio saying that our lives are tragic? Those are not the people that my child and I are in alignment with, because our lives are not tragic.
What was the walk anyway? A place to team up on your friends and family to raise money. Money to walk right on over to Autism Speaks. Why would other families fund raise in order to provide A$ with enough money to keep pounding the stigmatizing tragedy drum? MORE horrid radio spots, TV ads, billboards and videos. More pity, more slumping shoulders and more advice to go to “the walk.” No thank you.
Five years later when I was compelled to connect with the Autistic tribe I stepped into the virtual world. Once I got here…I naturally gravitated toward Autistic people. They made the most sense to me in conversations about Autism. About my son. Honestly, where else could I learn more about my now 16 yr. old son? I had no interest in reading any of the countless Mommy blogs and books on how they “recovered” their child with Autism. Why would I waste my time reading another Mom’s guesses masquerading as facts? I wanted to read and hear what Autistic people said and felt and did.
I made a bee line to what makes sense to me. Autistic friends. They tell me something useful. They taught me about my son and his processing system. They have given me the advice that has helped him find comfort in a world difficult to absorb.
Autism Speaks continues to ignore the requests of Autistic people to be heard by them. They refuse to comment on the very public complaints and BOYCOTT of their organizations practices. An arrogant company naming themselves Autism Speaks, with the motto of “It’s time to listen” refusing to honor Autistic people and their voices. Why can’t Autism Speaks figure out in 10 yrs. what I recognized in ten minutes, that Autistic people have the answers we seek to make other Autistic people comfortable.
Why continue to back a company that reinforces this horrible “silent treatment” of Autistic people? Why support Autism Speaks very deliberate choice to continue ignoring their words imploring for social justice? Why continue walking in circles another ten yrs. shrugging your shoulders feeling pained and burdened?