SO Proud to BE Nominated! Take a bow everybody!!
Grown Up Autism…
That’s exactly where we are headed as a culture, shifting away from an outdated Autism ’thought bubble’ that people have been stuck in. The bubble that does not see Autism as it is. A bubble of thought that does not value Autistic children or adults enough… to honor their powerful Autistic points of view. A bubble that does not even identify Autistic people as equals. A bubble we seek to burst! This narrow view that has heretofore hindered the grown up Autistic vision we believe, perceive and offer the world.
A vision which includes a world full of “physical and emotional equality supports” for Autistic people at all ages and stages.
Our big beautiful picture of equanimity.
On the highway to the 7th Annual ANCA World Autism Festival this ‘thought bubble divide’ strikes me now more than ever, as the true cause of the Autism divide. A divide prevalent between most professionals together with some parents of Autistic people and the Autistic people themselves actively co-creating and advocating in the community for their own unalienable rights.
The “thought bubble DIVIDE”
“Great Autism Divide.”
Equality for Autistic people is unequivocal. It is or it isn’t, you either get that…or you don’t. The schism of people that have juvenile ideas about Autism equality and how to interact with and perceive Autistic people VS the people that have very adult ideas about Autism equality and how to interact with and perceive Autistic people…
As I board the plane from LAX to the 2016 ANCA World Autism Festival in Vancouver this concept circles and hovers over my brain as if my mind is the airport runway control tower…
AutismHWY UNITED with ANCA Naturally Autistic
United Minds, HeARTS and Souls
After five years away, landing in ANCA territory felt like a warm welcoming home. The 2011 INAP Award’s Event we attended, meant the world to us. Connecting with young and old that respect Autism on joyful adult levels was the most refreshing thing felt then and again, in the NOW! Every delegate and participant from 81 to 4 yrs. old traveling to Vancouver for ANCA’s festival is energetically changed forever. The full board of acceptance and understanding brings abundance to the table everyday of this gathering. It’s a visceral and sensual bounty of goodness for Autistic people, their families and the industry seeking to support them ALL. A naturally rich community brimming with the knowledge that we all have something wonderful to contribute with or without the competiton. Having that direct experience of connection to Autistic culture opens hearts, minds and arms toward the myriads of difference life gifts to us ALL. A natural unspoken knowledge of alignment exists within the participants of the ANCA World Autism Festival . Unleashing a co creative flow which is vibrant, successful and unstoppable.
Co creating Autistic equality globally…
Uniting people that want to follow Autistic advice is a very powerful connection. People and companies that seek to employee Autistic people into the infrastructure of their organizations and events is what we seek. It is what levels the so called ” playing field.” It’s what has already been created in many instances. COMPLETELY in the instance of Naturally Autistic ANCA;
Autistic People creating a worldwide EVENT which becomes a platform for Autistic People to emerge from while launching careers and connection to culture!
This IS the future for Autistic people and most importantly the world. Respecting that there are differing ways of EQUALLY experiencing the world and that Autistic people are creating a world more naturally inclusive of the entire human experience. Experiences that many people in society have honestly glossed over and denied. Experiences Autistic people demand. Beautiful natural experiences vibrating in every moment of the ANCA World Autism Festival.
Every innovative and loving person can be involved in creating best practice for Autistic people by respecting Autistic people as EQUALS in this human experience regardless, of our systemic differentials. Creating new and innovative ways which make sense to and for Autistic comfort and success! That is what the ANCA World Autism Festival is really all about.
GROWN UP AUTISM…
Ayberk Aksu and Jenny Story
Joshua Cochrane accepts his award and speaks of profound PEACE!
Beau Brians and beautiful mandolins setting an accepting tone….
Carissa Paccerelli SCORES an award ARTFULLY!
Italian Artist Lisa Perini eloquently accepting her award with brother Alessandro’s translating support.
Phoebe Murer and MORE acceptance!
CANADA sweeps the SPORTS EXCELLENCE Category!! Kieran Stark’s acceptance rocked!!
Michael Savage’s stellar acceptance!
Tom Des Brisay awarded for the long-haul. Superb Marathon champion!
Vocalist Vell Baria overcome with emotion.
Leonora Gregory Collura speaking on the importance of cultural connection with Consulate General of Turkey!
An amazing emerging culture!!
Wise children/Joyous adults= Grown-up Autism
So PROUD to be INCLUDED!
“We must control our message. We must be the powerhouse behind our community as it expands.” ~Leonora Gregory-Collura
The MAIN element.
Grown up Autism personified in wise, joyous Autistic souls. ALL ages and ALL stages…
That special blend…
that works for YOU and/or your Autistic loved one. That’s the Autism Secret Sauce. The secret is within each Autistic person. Understanding a person’s Autistic framework and building upon that throughout a lifetime is the HWY to success. For everyone. Making snap assumptions about what an Autistic child/adult thinks, feels and needs in life is not awesome sauce. Creating that specially blended life plan “scaffold” for someone MUST include that ‘someone.’ NO ifs, ands or buts. It’s non-negotiable. Their input should always be the main ingredient in the sauce. If a person is non speaking that is no excuse to exclude them. There are always many things to discern and include from people using alternate means of communication which are integral to the recipe. As in: do not make the sauce without them!
It’s NO SECRET…
that incessant quick judgments are made about every age and every stage of Autism and Autistic people. Especially those using speaking alternatives as communication. People like my son are labeled as severe, profound and maladapted, all words we reject. These judgments have been running rampantly amongst people and most tragically the presiding experts for decades. Years upon years of programs built upon inaccurate Autism belief systems have many of us treading water that is not deep enough to support healthy vessels. I am regularly informed by experts that my non-speaking Autistic teen has the mind of a 2 yr. old. They also believe he is intellectually impaired. I have learned to ignore this ridiculous belief that these “presumptive specialists” hold about my now 17 yr. old son. Sadly, it’s these damaging and commonly seen expert beliefs, that families buy into and quickly add to their “sauce.” Don’t use flawed recipes in life.
Trusting what others say…
about your Autistic loved one over what they “say” OR “communicate” to you is a mistake. A very big one. It’s a betrayal. Imagine yourself in the position of wanting to voice your thoughts and ideals only to be talked to as if you are a toddler. Imagine feeling as if everyone is “managing you” without you. You are watching a “play” of your own life and you do not have any lines. It’s not a nice thing to consider. Possibly why…no one ever seems to! Handing over your instinctual common sense to so-called “Autism experts” is what I deem the ’slippery slope sauce.’ The sauce that is more like quicksand…where things can go sour and have you sinking quickly! You must realize that your loved one’s instinctual knowing is supreme and where all of the power lies. Do not second guess what you already know. No matter who is asking you to. Presuming competence shapes healthy attitudes and lives across the board. For your Autistic loved one /client, in the dynamics of the family and beyond. Families would be wise to take this power stance!
As a culture we are moving away…
from being told how to think and feel. In 2016 we see physical manifestations of just how unhealthy that has been. Autistic people do not respond to those tactics, genetically. We find that beautifully refreshing and a in all actuality; a much more natural human way of being. When you communicate to a non speaking person that you believe the people speaking around them, more than you believe in them: it’s painful. Just imagine for a moment what you would do and how betrayed you would feel in that instance. Just because someone uses words, they are believed and trusted to be correct about someone else’s non-speaking reality. When others assume things and speak for someone else day in and day out…that is not okay. It only stands to reason that some days there will be hell to pay because of it. Days that have nothing to do with “hormones.”
Finding the secret sauce…
for yourselves and those you love takes time and dedicated contemplation. It also takes a keen and unbiased perspective. Watch how a person’s musculature changes when they are feeling uncomfortable, triggered emotionally and or threatened. Anticipate comforting tactics in these very real instances. Apply these FOUR basic tenants completely to your loved ones and be unwaivering in your use of them. When you approach every moment understanding how important these 4 key components are things will shift naturally.
#1.) Emotional Clearance. Clear your emotional slate and be emotionally open and fully available to support your loved one.
#2.) Verbal Validations. Use the words which show you unequivocally support your distressed loved one and the physical and/or emotional pain they are currently experiencing!
#3.) Physical Supports. Decipher what these physical supports are, a chill zone space, cool water, diet, bathing in Epsom salts, taking a walk, protein snacks, deep pressured massage or tapping, trampoline activities or swinging for joint compression.
#4.) Commitment of Respect. The resolve that you will be there for your loved one no matter what happens. Without shame or guilt you will respect what they feel, sense and experience. It’s just that simple!
For my son: Dietary changes, epsom and eucalyptus infused baths, loads of cool water and towels, foot, back and head massage with pressurized tapping, melatonin and horseradish infused foods (keeping congestion away) are currently in the mix for his comfort blend. He has actively taught me with out words his entire life what he prefers. My astute Autistic friends experiential words seem to validate and buttress every instinct Wyatt directs me to follow and for us….
It’s IN the SAUCE!!
THAT…IS the AWESOME SAUCE!!