Something wonderful happens when you have a super- natural, Autistic child and you then make friends with other super-natural, Autistic people. You feel super-naturally empowered. You don’t feel like you are operating in the dark all alone. You have friends full of enLIGHTenment that understand and recognize Autism and your child in ways that you cannot experience; internally (unless of course you yourself are Autistic and parenting from an Autistic perspective.) Internal understanding of Autism is essential for the enlightenment of all people and something I have long called “innerstanding.” It’s a concept that non-Autistic parents need when raising Autistic people of any age at ANY STAGE.
It is critical to understand that the varied sensitivities and processing systems Autistic people experience daily are ‘differentials that slide on scales’ within each individual person’s framework and development over a lifetime of experience. This valuable information has opened my mind to the bigger Autism picture. A pragmatic reality void of fear and full of realistic knowledge. A more worldly and intelligent view of Autism and all of the variables experienced within Autistic people. The sooner parents and ALL PEOPLE empower themselves by learning and thinking about this BIGGER Autism PICTURE… the better.
Autistic people have always been innovators in this world and will continue that work “in the closet or out of it.”
Right up until and into the amazing days ahead… when there are NO CLOSETS hiding Autistic people!
Be proud to understand this truth. This knowledge builds power and will have you and your family operating from a position of power that will lead you, your Autistic loved one and your entire inner circle towards success in the LIGHT. When you are being hidden OR hiding behind Autism’s dark and erroneous stigmas you will undoubtedly remain hidden away and invariably keep those oppressive stigmas in place. When Autistic people and their families do not take pride in their own lives by continuing to reside in shame and fear how then will we garner worldwide innerstandings and acceptance as a whole?
We won’t. The world will follow the Autistic communities lead. Where will we lead the world?
Shame, fear and insisted upon confidentiality are emotionally unhealthy places to reside.
The longer you are hidden or choose to hide, the longer the stigma controls your life, your spirit, your free-will and ultimately your soul.
Confidentiality and exposure are two separate entities that mutually exclude each other regardless if you are the child of the President-elect or the corner grocer… We cannot have it both ways and that plays out today more than ever. In an age of ‘electronic cuneiform’ we are no longer writing our thoughts on a rock that no one will see for centuries. We are literally telegraphing our thoughts, ideas and experiences globally in real time. It is mind boggling as stated in our last blog post here. We live in a time quickly moving to re-define itself. We urge Autistic people to step up, be heard and contribute! Remove the shameful confidentiality enforcement and painful stigmas that have kept the world in the DARK concerning valuable Autistic people and their priceless Autism truths.
It’s time we hold the shame , fear and stigma by operating from positions of power by stopping the world (and some Autism stakeholders) from continually pathologizing the super natural Autistic way of being!
After the unprecedented 2016 presidential election a glass ceiling has been shattered here in the United States of America. Not the obvious gender based one that all attention had been trained upon. The ‘glass ceiling’ we refer to is an entirely new concept. The communication “glass ceiling” that has expanded greatly in 2016 and …as we have been saying all along, this entire great decade of change. We are living in the generations of complete and total plugged in communications. Just look at what our lifetimes have witnessed. In the last century our ability to communicate globally went from 0%————————————-100%.
Completely downloaded and connected!
With just the push of a button and the stroke of some keys…you can be heard and you can be read; LOUDLY and CLEARLY all around the world. What communication ‘ceiling shattering’ progress!! Progress we don’t seem to marvel at or even acknowledge because, it has become so ‘normal’ so common-place. Something that was once unheard of has become our everyday experience.
In this 2016 news cycle of social interconnectedness we communicate freely with the greatest of ease and at lightening speeds.
But do WE…really?
In today’s society we frequently see communications that are filled with disdain. Conversations that are unkind, extremely harsh, personally critical and beyond. People seemingly have less and less empathy in this fast paced entertainment and information driven society to be mindful and gracious. It is seemingly all about out doing one and other or having the final word. The art of communication has been lost. Many people spend time “branding themselves” and “messaging” their personal agendas instead of listening to one and other and enjoying authentic or caring human connections.
In this GENERATION of COMMUNICATION what better time and place in history for us to RE~BRAND those communicative styles. In Autism we have a responsibility to our culture to understand communication on levels that are as deep as the ocean. We cannot merely skim the surface and rush along as so many people seem to. Communications must be respected and reworked in most instances and through this process you find much more respect for the individuality of each person you interface with. In our fast paced lifestyle how often does this contemplation even occur? More and more we seem to witness people talking at one and other and in many cases not truly understanding who they are even talking to.
Melania Trump recently revealed that she wants to have a national conversation about this harsh style of communication in the world. Many people made a big joke of that by saying, “She should start at home with her husband.” There is some truth in that because, honestly we should ALL start at home within our own families. We can all be more respectful to our individual family members; ‘Autistic or Nautistic.’ More forgiving and respectful of our neighbors and those we meet and greet on a daily basis. Autistic people have shown us their extreme discomfort in conjunction with many of the so called “social norms” or ”ways of the world.” Listening to those discomforts and concerns will guide us to more authentic ways of getting our information, thoughts and feelings recognized. Let’s join the new first lady on her platform for respectful communication change!! AutismHWY hopes that kinder and clearer communication is ONE THING we can all agree upon as we move forward to 2020 visions…
A whole new era of COMMUNICATION through respectful understandings and kind gives and takes?!
Can WE do this?…YES we CAN!
Today, November 8th 2016 is election day in the U.S.A. It should be a proud and exhilarating day for each and every one of us. However, that is just not the case this year. The past political campaign of Hillary Clinton verses Donald Trump has been soul crushing. In a country that prides itself in being “United” today is most ironic. The great divide will become apparent as the poles close one by one. Many of us wonder this morning what tomorrow will bring? The barrage of hateful rhetoric that has traveled in both directions is hard to process. For anyone.
Sadly, it is reminiscent of the Autism Divides we see so prominently. Those that believe Autism is a disease that must be eradicated, those that seek to blame others for Autism’s existence, those that use harmful language to share their frustration about a life which includes Autism and Autistic people.
Juxtaposed against a vibrant community of love and understanding for Autism and Autistic people. A community of people that accept and appreciate that; Autistic DNA runs throughout a human system for a lifetime. That Autism is an INTEGRAL part of humanity and must be supported in ways that make the Autistic person comfortable NOT in ways that make “others” comfortable.
Listening to Autistic voices about Autism…priceless.
At AutismHWY.com we have faith in people, in self worth and in UNITY. We came on line 6 years ago to prove that different thinkers are to be uplifted and united with society not marginalized and held down by it. We are all better together, respected and…UNITED FREELY. BRIGHT FUTURES full of bright ideas for ALL PEOPLE is what AutismHWY is VOTING FOR and BANKING ON!
Today October, 14th 2016 Autism $peaks has announced that they have updated their organizations mission statement for the first time in their 10 years of existence. Correctly removing the word cure from it’s content and adding in the words acceptance and understanding. Examining the calculated language further you see, that there truly isn’t the change Autistic activists have been seeking. You do not hear the language of heart and soul that speaks to Autistic people. You still hear the cold language of dehumanization and the “less than” mentality. People may say, “that they are making progress” and expect Autistic people that have been harmed by their 10 year media awareness and fundraising campaigns to agree. Well, they don’t agree and you can read about that DIRECTLY HERE.
People seem to credit Autism $peaks for bringing Autism to the forefront in media. I had heard of Autism and was well aware of it’s existence long before A$ came onto the scene. What Autism $peaks did was verbally bash and beat Autism up in the public domain through television, radio ads and even billboards. Giving Autism a kicked in gut and two black eyes then conveniently claiming to the world that they would take care of it all. Take care of it all with the millions of dollars they marketed, mined and removed from many of our local communities. For a decade executives have enjoyed their walk in the park “charity life” of fundraising with celebrities and shmoosing on television. Where was there any “understanding” or acceptance” for Autistic people? Where was there any real Autism understanding spread into society?
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
Autism Speaks enhances lives today and is accelerating a spectrum of solutions for tomorrow.
We hear the words, causes, solutions and BETTER interventions along with the word DISORDERED used twice to describe Autistic people. Heck, they couldn’t even use the phrase “Autistic people”. This from a statement that was said to be crafted over the better part of a year? Seriously, this is long thought out change?
This “change in mission” seems more in alignment with the quote from an A$ spokesman using the terminology that this change of mission is an “evolving strategic direction.” Everything A$ does is strategic. This much we know. Autism is big business to them. They seek to garner millions of dollars from the families they stoke with fear and misinformation. This has been their main strategy and with a new “mission” how will their fundraising change? Our guess is, it won’t.
Autism $peaks refuses to admit the error of their ways by making a public apology for the harm they have caused to an entire culture of people. Their mission continues to be based soley on what uninformed parents and professionals seek. Which seems to be from all language and appearances, to free themselves from the complications of Autistic life. Continuing to call “early identification and action” intervention is itself harmful. We intervene when we see something “wrong” and then seek to modify that something. We must support Autistic people without the goal of intervening against them. Autistic people need supports to become the best version of themselves NOT interventions to become an idea of who they should be for the sake of others. Listen to the language and tell us again Autism $peaks has “CHANGED.”
After many years of BOYCOTTING and BLOG WRITINGS Autistic people and their allies have turned the Autism tide. Autistic people have built their own infrastructures without the 25 million dollars that The Wright’s used to create the instant A$ platform. Autistic people have year after year stood for their rights to be seen, heard, respected and honored. In big ways with little to no money, let alone a platform! I recall a very heated political discussion that went on with A$ board members Ed Asner and his son Matthew verses countless Autistic and ally activists. In that hours long conversation Ed Asner finally admitted that “Yes, perhaps it was time for 1 (Autistic person) to be on the A$ board of directors” beside him and all of the other non Autistic members. WoW, You think? I actually asked Mr. Asner if he would like to be part of a show titled “Lou Grant Speaks”…only he would not actually get that opportunity because, the only scripted lines went to Mary and Rhoda!? It was quite the marathon conversation.
Shortly thereafter it was announced that there would be not ONE but, TWO Autistic board members joining Autism Speaks; Valerie Paradiz and Stephen Mark Shore. Two people that were not speaking out against Autism Speaks. How’s that for strategic?! In 2011 when John Elder Robison was “strategically” appointed to an A$ science board, it was noted that he was not an actual seated board member. He also urged Autism Speaks to change their mission and the language they used in order to create funding and his advise was dismissed. He left the organization with a terse resignation letter referencing the brutal language of the late Suzanne Wright’s 2013 “Call to Action” op-ed.
This strategic evolutional direction of Autism Speaks is transparent to those of us that accept and understand Autism and there’s a certain continuity of irony in that. Autism Speaks HAD TO change their mission statement just like Donald Trump HAD TO deny he was a sexual predator. When a culture of people who’s humanity has been willfully damaged and stigmatized by others… begin speaking out, the ripple effects become waves. Waves of authentic consciousness that build with connection to each and every soul in that alignment. Having just returned from one of the most rich Autistic created and driven experiences ever ** The 2016 ANCA World Autism Festival ** this Autism $peaks ‘press release’ feels like more of the same old stale breadcrumbs they scatter to optimize their marketing.
Autism $peaks is in the business of raising money to make Autism easier for non Autistic people. Listen to their language: THE WAY THEY SPEAK. They are not speaking the language of understanding and acceptance… of heart and of what will work best for Autistic people and their intensely beautiful emerging culture. Writing the words into a mission statement that still sees Autistic people of all ages and stages as DISORDERED doesn’t help. The value in Autistic people has so much to do with their difference. Their unique abilities and gifts are natural and valid and in need of recognitions and supports, not solutions and interventions. Best practice for Autistic people will be created by other Autistic people in conjunction with people that understand this simplistic reality. A$ talks the talk and only walks the money walk. We won’t be able to trust them until they acknowledge what they have done and completely honor what we are saying …
GROUP PHOTO from the amazing 7th ANCA World Autism Festival Vancouver BC Canada
Autistic people need to mentor and teach other younger Autistic people. Autistic people are equals and ready to co-create with humanity when you really are listening.
Not just SAYING that YOU DO.